Before you scroll down, please be aware that the pictures on this page are graphic photos of EB wounds and blisters.
I recently started using two new products on my wounds and decided to make this diary to document my dramatic improvement. The products are called Active Manuka Honey and Egyptian Magic. Please visit their websites for more information.
Feel free to also contact me for more information.
CLICK ON PHOTOS TO SEE LARGER
This is what my back looked like before I started using these products. (although I had already started using egyptian magic on my granulated (puffy) sores and some red and recently healed areas. My back was often much worse than this picture, however I was never in the mood to get my picture taken on those days as you can imagine, but now I wish I had.)
I used mostly topical antibiotic ointments and other common ointments. While I was able to keep most bad infections away, my skin usually took a very long time to heal and would break back open again within 24 - 48 hours. My back has been this bad or worse for almost 9 years now. While EB effects my whole entire body, including internally, my back has been my major problem area. While the recent invention of better bandage supplies has helped tremendously, I still could not get many wounds to heal and especially to stay healed longer than a day or two.
This picture was taken 1 month later. As you can see there is amazing improvement. The way I use the products is I put the Manuka Honey (a type of honey know to kill bacteria and help with wound healing) on the open wounds and the Egyptian Magic (which is made from bee products and olive oil) on areas that have just healed and red/pink areas. I also use the Egyptian Magic on wounds that are over-granulated (puffy). These wounds normally take YEARS to heal. With the Egyptian Magic they heal within weeks at most. It is truly amazing.
Ingredients: olive oil, bees wax, honey, bee pollen, royal jelly, bee propolis, Divine love
Manuka Honey USA
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Active Manuka Honey is used for Acid Reflux, Heartburn, Up-Set Stomach, Stomach Ulcers, Gastritis, Irritable Bowel Syndrome, as well as for External Applications such as Burns, Wounds, Ulcers, Sores, Scars, MRSA.
This picture was taken 2 days later and as you can see my back started to break open again in places (as EB skin does) But from here on out you will see how quickly these large wounds heal. All of the pictures from here on are taken 2 or 3 days apart. They all have the dates on them as well. I'm sorry that a few are a little blurry.
The photo to the left shows dramatic improvement to my lower back. The healed skin, while some parts have broke open the rest is staying healed and much of the redness is going away and the skin is starting to turn back to my normal skin color. I have not seen this happen on my back for almost 9 years now. Below is a close up of my lower back. Unfortunately I am running out of honey and have had to conserve so my upper back is not doing as well as my lower but I am still so excited with my improvement. I am having much less pain and no infections that I am aware of.